Skip over navigation

Subscribe:

RSS Feed

How Your Support Makes A Difference

See how your donations and support will affect MS research in Canada.

Community UpdatesRSS

 

A Step in the Right Direction

October 20, 2008 Michael AugustineLisez en Francais

Hi folks,
 
I want to apologize for whining so much during my last posting. Your words, and those of others who are closer to me made me realize that my current relapse is just another example of life handing you lemons, and you turning around to make lemonade.

Case in point:

I decided that in order to get better, I needed a bit of time to decompress from the pressures that life had been applying. Therefore, I bore down and decided to go home for the Thanksgiving Weekend. I grew up in a small city; more a big town than anything else. Although it is well-known, it remains still very much “small” in its ability to accommodate people with my mobility issues. Thus, I usually dislike going to visit my parents, not because I don’t love them, which I do with all my heart, but because their house is also very inaccessible and challenging to maneuver in. Still, I grit my teeth and made the effort. My partner had a previous family engagement elsewhere and as I do not drive, I had to make arrangements to take the train, resolving myself to traveling solo for four hours, back home.
 
Just so you know - I love taking the train! Before I became ill, I would voyage at least twice a month, during college, to visit my family. I find it to be the most comfortable and relaxing way to travel, as well as being the most scenically appealing. When my walking became seriously affected, it was no longer viable for me to travel that way. It took some time for the rail system to properly accommodate wheelchair patrons, and I wondered if this time would be as pleasant as I recalled.
 
Booking a trip online was challenging. This being my first time, I became seriously confused, and had to resort to using my parents’ credit card, having inadvertently frozen mine through several failed attempts. The plan was to leave Friday, before the weekend, and then to return the following Tuesday, thus making the most of my mini “vacation.” Eventually, I succeeded in making the  reservations, and was elated at somehow miraculously managing to receive the advance booking discount for the full return trip, saving me over a hundred dollars. Eager to once again indulge in a favorite activity, I preemptively called the station the next morning, and confirmed that, yes, my booking had been successful, and any special arrangements needed would be made.
 
I awoke at 5 am that Friday, in order to ensure I would arrive in a timely fashion at the depot in the neighboring city. However, when I got there in the wee hours to pick up my ticket, the booth agent appeared somewhat confused, and informed me that my ticket had been booked wrong. I immediately panicked when she told me she would have to upgrade me to first class. I had no additional cash on me, and my credit card was still frozen. What was I to do???
 
I needn’t have worried!
 
As it turns out, all trains running the southern corridor currently have only one available seat, per trip, for wheelchair patrons. As luck would have it, that seat always happens to be in first class. Moreover, because it is the only seat ever available, it gets charged at the regular rate, while still including ALL the perks, like a full hot meal, complementary beverages, snacks, and business class seating - perfect for a guy that needs to spread his legs when traveling long distances.
 
Needless to say that between the ease of boarding, the superb customer service, the comfort AND the price, this went down as my best trip to date.
 
The weekend continued to follow similar trends, as I spent a very nice visit with my parents, my sister’s family, and my toddler niece, none of whom I had seen in person since Christmas last. Moreover, the entire extended family was present for our Sunday dinner, allowing me to reconnect with people I had not seen in many months. An added bonus, I was able to visit two of my oldest friends from college, who had ironically moved mere minutes from my parents only a few years prior. The trip ended with an equally comfortable ride home, another catered meal, and the chance to catch up with yet another close college friend, who kindly drove me home from the station, saving me the two hours of bus rides and luggage hauling.
 
And here’s the thing: if I hadn’t been feeling unwell, I’d have never gone in the first place!
 
Life works in truly funny ways. I’ve stopped trying to understand it now, in any way other than hindsight (which is always 20/20). It never ceases to amaze me how God, luck, or fate, or karma - whatever it is at work in the universe - always seems to steer you where you seem meant to go.
 
I’m curious for those of you out there who read my last entry, and related to the words I wrote...did the holiday also provide you with that touchtone of hope? Was there something else that may have given you that lift? Rather than use this as another opportunity to vent, share with me your uplifting stories from the past week and how they may have helped you through some difficult times.
 
I look forward to hearing from your stories.
 
Irreverently yours,
 
Aug, who is always looking for a little more hope!
Posted in Living with MS | Permalink | Have your say: 4 Comments

Comments

From  Irene  on  October 23, 2008
Morning Nice to read your adventure. It is always nice to hear that others are willing to help. It makes me want to look at things differently. Thanks
From  Edward Manke  on  November 19, 2008
Hi Aug, my name Is Ed. it sure sounds like you had a great trip. One of the most important things I say to my wife and daughter is think postive. Given the difficulties you had on your trip thinking positive sure made things work out great for you. I too have MS but I am not in a wheelchair. I was diagnosed 12 years ago and have been retired from the car business for 5 years. I have to use a cane because I have fallen at work and broke my arm. Shortly there after I fell again I was with my daughter and had to go to the hospital and get 7 stiches to my eyebrow. She was very young at the time and it was very hard on her to see me bleeding. This is why we have to think positive when living with MS. I am so blessed to have my daughter to help me when I fall. Hope fully having my cane will prevent this from happing again. The guys at work kind of forced me to use a cane. It was the hardest things i did. It was like addmitting I was disabled. I have a loving wife and beautiful daughter and they are the biggest reasons for me to think positive and keep on going. Ed
From  Aug  on  January 17, 2009
Hi Ed. Thanks for your kind words. I apologize for getting to responding to you so late, but these days my life is a whirlwind because, as I said, I am living it to the fullest. Without trying to be condescending, I'm very proud of your courage and positive attitude, I'm also glad that you have your wife and daughter to give you the motivation to keep trying your best. Often, that support makes all the difference in the world! Take care my friend!
From  Toosje Wright  on  May 19, 2009
Hi, I have been living with MS for 27 years now. I was 7 when I first started to develop the symptoms. Being a child at the time with certain specialists a person of that age has no voice so my mother (who was a nurse), became my voice. She always told me it was okay to whine or be upset about the MS was fine but not to make a habit of it. Now since my mothers death in 2005 and living with someone who doesn't understand all that much about MS, I have learnt that sometimes you just need to get away and go for a nice long walk to let out that scream and usually the fresh air does you some good to help you to reevaluate things and return to your life of chaos...lol. I also have a twin sister, I always wondered why me and not her. My mother always told me the lord only chooses that ones that he feels are strong enough to carry these burdens. She has also been one of my biggest supporters. She has become the one that I will usually whine too, and then she brings me back to the reality that has become my life. Take care remember it is okay to whine. http://www.niagarathisweek.com/news/article/117402

Submit Comment