Skip over navigation

Miss 

By: Natalie 
Date: 20/11/09 
Many Scars... I had my first episode in 2000. Doctor misdiagnosed it as a stroke. I knew something was wrong. After eight years of episodes and learning how to pretend that pain was normal and everything was ok, I was diagnosed by the same Neurologist that said "I am not sure how many of your symptoms are real, Natalie". I am 35, female and I live in Trinidad and Tobago, West Indies. There is no Support Centre, Group, there is NOTHING. The local DPI has no information on Multiple Sclerosis. I have decided that I am going to DARE to start my own centre. It is dfficult just getting out of bed, BUT I AM GOING TO DO IT. Is there any information that anytone can help me with regarding the centre? I have opted for Alternative Medicine. FLUCTUATING PAIN. I just can't handle wondering how I am going to feel tomorrow. I am fed up of hearing " But you look so good." When people in Trinidad hear that I have MS. I AM STILL ME...MS HAS JUST MOVED IN. Well, the lease is UP. Get out MS. 

Comments

From Aug 
On November 22, 2009 
Hi Natalie. I'd like to share with you a story. 60 years ago, a young, Montreal woman by the name of Evelyn Opal was diagnosed with multiple sclerosis. At the time, her doctor told her what every other doctor of that day would tell people who heard this news: "go home and hope for the best". That wasn't good enough for her! Back then, there were almost no resources available for people with MS, so she set out to create one. Today, her drive and commitment live on in The MS Society of Canada, the "resource" she created.This very website is proof that determination, dedication and perseverance can enable one to surmount even the highest obstacles to achieve their dreams. Sometimes, one person can do more than simply make a difference... they can make all the difference in the world! I wish you the best!  
From Dionne 
On November 22, 2009 
A simple question - why hasn't anything been posted about the remarkable new discovery made by Dr. Paolo Zamboni. This is huge! W5 produced a great program last night - this is a positive outlook in which we need to rejoice. They spoke of a dr. at McMaster hospital in Hamilton and the fact that the Buffalo ois looking for MS patients for trial in the U.S. and Canada. They simply want to test to see if the veins in the neck and chest are indeed twisted as Dr. Zamboni discovered and if this is the case, there is treatment available. It's not the cure but it is a start - let's jump on this! 
 

Submit Comment